January, 2004

December, 2003

Saturday, January 31st, 2004 - CJ had some apnea overnight so they have decided to delay taking him off of the ventilator. They will continue to wean him from it for a few days. Overall he's doing quite well.

 Friday, January 30th, 2004 - After lowering the High Frequency Ventilator as low as it will go they have CJ on the original one at a lower rate. If he continues to do well on that they will likely take him off of that tomorrow and put him on a CPAP connected to the tube from the ventilator. That way they can reconnect if necessary. Then the next step is to connect the CPAP to the nose. He's doing really good and looking better than ever.

Thursday, January 29th, 2004 - Today is CJ's one month birthday and we have big news. If everything continues the way it is going CJ may be off of the respirator sometime this weekend. If so they will put him on a CPAP which will help him as he breaths on his own.

Wednesday, January 28th, 2004 - CJ continues to do well. Each day seems better than the day before. They continue to slowly lower the respirator settings. 

Tuesday, January 27th, 2004 - CJ had an excellent day! His x-ray shows even more improvement in his lungs and they've been able to lower the settings on the new respirator even more. 

Monday, January 26th, 2004 - CJ is four weeks old today. The x-rays show CJ's lungs are improving with the new respirator. They started lowering the settings today. Things are looking better every day.

Sunday, January 25th, 2004 - Still doing well with the new respirator and his lungs are looking better than they did yesterday so it looks like the new respirator is doing it's job. CJ has gained an inch in length but the big news is he now weighs one pound fourteen ounces. Maybe he'll top two pounds during the next week. He's looking really good.

Saturday, January 24th, 2004 - CJ is doing well with his new respirator. He's already shown some improvement in his lungs. Unless it is necessary to go back to the old one CJ will stay on this one until he can get off completely. It's been a good week.

Friday, January 23rd, 2004 - Today they started using a new respirator on CJ. This one  uses more rapid breaths with less pressure. This should start his lungs healing. They are using it for the weekend and then will evaluate him. They have also started his steroid treatment. Another good day.

Thursday, January 22nd, 2004 - Another good day for CJ. Everything remains about the same as yesterday.

Wednesday, January 21st, 2004 - Today may have been CJ's best day yet. Yesterday they detected a slight heart murmur. The started him on a medication to help a heart valve finish closing. Today they can't hear the murmur. They will keep him on the treatment for five days to make sure the valve has closed. The tube through his arm into his chest has been removed. Steroids will be started after this treatment is finished. He now has an IV just for medication. He's now getting all of his nutrition in his feedings. He was very active tonight and is keeping his eyes open more. He's looking the best he has yet. He also appears to be filling out even more in his arms and legs.

Tuesday, January 20th, 2004 - Another good day for CJ. Hopefully this is developing into a trend. They are going forward with the steroid treatment to try and advance the development of his lungs. 

Monday, January 19th, 2004 - Three weeks old today. CJ had a good day. This week is starting out better than last week. His the results of his blood culture came back negative so there is no infection in the blood. There was a little infection in the mucus from his lungs but the antibiotics took care of that.

Sunday, January 18th, 2004 - CJ has both eyes open. He had a good day. 

Saturday, January 17th, 2004 - Maintaining is the word today. Everything is about the same except that feeding is now up to 12 CCs.

Friday, January 16th, 2004 - CJ's Doctor says she doesn't think he has a virus. He's just having some bad days. His lungs haven't developed as fast as they would like so he will probably get steroids for a few days to see if it will speed up their development. Feeding is up to 10.5 CCs.

Thursday, January 15th, 2004 - They put CJ on antibiotics today and took a blood culture to see if he has some type of infection. They've been having to suction his lungs quite a bit. Hopefully we'll know more tomorrow.

Wednesday, January 14th, 2004 - CJ is developing so fast  you can see changes from one day to the next. They haven't weighed him but can see he is growing. His hands look bigger and his arms are filling out. Instead of  increasing the volume of his feeding they are now adding a fortifier to add calories and help him put on weight faster. He continues to look better every day.

Tuesday, January 13th, 2004 - They finally had to replace the breathing tube again during the night but I guess third time is the charm. This one is working fine. They have raised CJ's feeding up to 9 CCs and lowered the respirator settings. He's tired after his ordeal but doing better.

Monday, January 12th, 2004 - CJ is two weeks old. We had a bit of a set back today. They replaced his breathing tube and it slipped so they had to do it again. He had a rough day because of it. They removed the IV from his stomach so that can heal. They also raised his feeding to 7.5 CCs.

Sunday, January 11th, 2004 - CJ's a lady killer already. He has all his nurses charmed. His skin color looks even better than yesterday. Look like he may be able to open his eyes any day now. Feeding  is now up to 6 CCs. At this rate it won't be long until they can eliminate the nutrient IV.

Saturday, January 10th, 2004 - CJ has has his own Snowman Beany Baby. Doctor says he is doing great. Lung damage from ventilator is no more than expected and should get better after he is off if it. His feeding is now 5 CCs. They were able to insert the catheter. His coloring is looking better. Overall he's doing quite well.

Friday, January 9th, 2004 - CJ is looking much better. They now have his feedings up to 4CCs.

Thursday, January 8th, 2004 - CJ really likes his pacifier. Continued improvement. The feeding that started at one half CC is now up to three CCs every three hours. He should start showing weight gain soon.

Wednesday, January 7th, 2004 - CJ is beginning to look much better. Skin tone has improved a lot. They've removed the plastic covering the incubator. His feeding is going well. They did have to raise the respirator some because his CO2 level had elevated but everything else seems to be going quite well and that is just a temporary measure until his blood gases level back out. 

Tuesday, January 6th, 2004 - The attempt to put in a catheter failed because his veins are too small. They will try again in a few days. Slow but steady improvement continues.

Monday, January 5th, 2004 - One week old today. They are going to leave all of the settings the same for a while and work on putting some weight on CJ. Tomorrow they plan to remove the IV from his umbilical cord and insert a tube through his arm into his chest. Less risk of infection.

Sunday, January 4th, 2004 - Everything is still going well. The skin is looking better. Coloring is better. Feeding has been increased again. Handling the suctioning better. Very little mucus now.

Saturday, January 3rd, 2004 - Today they lowered the respirator and the amount of oxygen they are having to give CJ. He is having some problems during suctioning but they are getting less mucus from his lungs. Increased his feeding.

Friday, January 2nd, 2004 - Had a scare today. Breathing tube stopped up and CJ's body crashed. After inserting a new tube he came back quickly but it took a couple of hours to stabilize him. There is mucus in his lungs they are going to have to get out. Doing better tonight.

Thursday January 1st, 2004 -  Second hump has passed. Made it through the first 72 hours. CJ is doing pretty well considering everything. Mom went home today.

Wednesday, December 31st, 2004 - No major problems. Holding his own.

Tuesday, December 30th, 2004 - Most critical time has passed. The first 24 hours are supposed to be the worst.

Monday, December 29th, 2004 - After delaying delivery four days CJ couldn't wait any longer. He is delivered by emergency surgery. Long road ahead but he has a strong spirit.

Christmas Day - Mom goes into labor. Little chance of survival if she delivers today.

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